About FLDI

Adult life deserves its own infrastructure.

FLDI is being built to help people with significant disabilities and complex support needs pursue the adult lives they choose—through practical resources, mentorship, opportunity, representation, and community.

Our mission

One mission. Connected parts of life.

FLDI focuses on relationships, education, work, independence, community, purpose, and legacy. The organization is designed around one connected participant journey rather than a collection of disconnected services.

Duchenne/Becker muscular dystrophy is the founding community. High-support physical disability, power-wheelchair life, personal assistance, and complex support needs are areas of depth. Autism/neurodivergence and overlapping communication, sensory, and executive-function needs are included from the beginning.

What disability-led means here

Lived experience helps shape the organization.

FLDI is not built around pity, inspiration, or a single definition of success.

Participant choice

People choose their own goals, routes, level of participation, and whether they want to share their stories publicly.

Full adulthood

Relationships, work, money, community, privacy, recreation, and purpose belong in disability support—not only medicine and transition planning.

Condition-specific depth

Shared infrastructure can serve multiple communities while preserving the knowledge and lived experience that matter within specific conditions.

Build deliberately

Programs move into active delivery only when need, leadership, accessibility, safeguards, funding, and outcome measures are in place.

The long view

A broader disability-led organization over time.

FLDI begins where lived and organizational knowledge is strongest, then intends to expand carefully across other significant disabilities and high-support experiences.

The goal is not to create a separate organization for every diagnosis. It is to build shared systems for adult life while allowing condition-specific communities to shape the work that affects them.

See how FLDI plans to grow →