Participant choice
People choose their own goals, routes, level of participation, and whether they want to share their stories publicly.
About FLDI
FLDI is being built to help people with significant disabilities and complex support needs pursue the adult lives they choose—through practical resources, mentorship, opportunity, representation, and community.
Our mission
FLDI focuses on relationships, education, work, independence, community, purpose, and legacy. The organization is designed around one connected participant journey rather than a collection of disconnected services.
Duchenne/Becker muscular dystrophy is the founding community. High-support physical disability, power-wheelchair life, personal assistance, and complex support needs are areas of depth. Autism/neurodivergence and overlapping communication, sensory, and executive-function needs are included from the beginning.
What disability-led means here
FLDI is not built around pity, inspiration, or a single definition of success.
People choose their own goals, routes, level of participation, and whether they want to share their stories publicly.
Relationships, work, money, community, privacy, recreation, and purpose belong in disability support—not only medicine and transition planning.
Shared infrastructure can serve multiple communities while preserving the knowledge and lived experience that matter within specific conditions.
Programs move into active delivery only when need, leadership, accessibility, safeguards, funding, and outcome measures are in place.
The long view
FLDI begins where lived and organizational knowledge is strongest, then intends to expand carefully across other significant disabilities and high-support experiences.
The goal is not to create a separate organization for every diagnosis. It is to build shared systems for adult life while allowing condition-specific communities to shape the work that affects them.